Monday, January 11, 2016

Invisible Pain

What is endometriosis? What about interstitial cystitis? Those are questions I'm often asked when people wonder what's wrong with me. What are they to me? Well...

Its smiles to hide pain.
Its bloating.
Its "how far along are you?"
Its tears.
Its wacky hormones.
Its "these damn pants don't fit."
Its laying in bed.
Its exhaustion.
Its cranberry juice and water.
Its hormone therapy.
Its spice-less food.
Its going to the bathroom constantly.

Its morning pep talks to get out of bed.
Its being out of "spoons" before noon.
Its like walking around in labor.
Its stop-what-your're-doing contraction like pain.
Its "there's a chainsaw in my vagina."
Its middle of the night sweats.
Its being 28 years old having menopause like symptoms.
Its wondering if you'll have children again.
Its unbearable periods that feel like death.
Its like tiny people living on your insides constantly at war.
Its praying for the pain to subside so you can fall asleep.
Its heating-pads and pain pills.
Its walking around like your uterus is about to fall out.
Its the fetal position.
Its nausea. 
Its praying for a cure.
Its UTI after UTI.

Its being poked with needles.
It's biopsy after biopsy.
Its "pee in this cup so I can check your bladder and kidneys."
Its "does it hurt when I push here?"
Its sitting in the shower crying so that others can't see or hear.
Its walking with a limp.
Its stretchy pants and big shirts.
Its life-changing.
Its life-altering.

It's an invisible disease that no one believes unless they are going through it themselves or knows someone who is. It's not a woman being lazy or crazy. She's not "just on her period".  There is no cure. NONE. Hystorectomys aren't the answer. Removing ovaries doesn't solve the problem.

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